Tuesday, 25 January 2011


Carers UK is the voice of carers. Carers provide unpaid care by looking after an ill, frail or disabled family member, friend or partner.
Carers give so much to society yet as a consequence of caring, they experience ill health, poverty and discrimination.
Carers UK is an organisation of carers fighting to end this injustice. We will not stop until people recognise the true value of carers’ contribution to society and carers get the practical, financial and emotional support they need.

This interactive website/CD ROM offers an introduction to the issue of caring using a variety of text.

Carers Wales is part of Carers UK. We work for a better deal for all carers in Wales. We are a policy, campaigning and information organisation. We are a membership organisation, run by carers for carers through an elected Board of Trustees.  Our policies are guided and influenced by the Wales Committee, elected by the members in Wales. The Wales Committee is a sub-committee of the Board of Trustees.

The Princess Royal Trust for Carers
The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK. Through its unique network of 129 independently managed Carers' Centres and interactive websites, Carers.org and The Princess Royal Trust currently provides quality information, advice and support services to 290,000 carers, including just over 15,000 young carers.

Carers - A directory of UK health, disease, illness and related medical websites
that provide patient information. Self Help, Carers Support Groups, Benefit's Advice
and much much More : Have a browse
http://www.patient.co.uk/showdoc/4/%20-owdoc/4/ -

Counsel and Care is a national charity getting the best care and support for older people, their families and carers. We do this by providing advice, information and financial support and by influencing policies, services and funding.
From over 50 years Counsel and Care has been working to make sure that everyone who comes to us for advice and information receives the support that they are entitled to. For more information about the advice service, please click on http://www.counselandcare.org.uk/

Saga Respite for Carers Trust
This site has quite a lot of information,
  • Our emphasis is on providing support and information to enable you to make a decision that is right for
  • your situation : Nursing Homes, Hospitals, Benefit's, equity release, financial planning,
and quite a lot More: worth a browse

Caredirections News Letter

Welcome to the Internet’s unique guide to care and the rights of older people.

and Carers
The fundamental objective of this pioneering site is to empower people with the information they will need to make truly informed choices – to give them continuing control in their lives, or the lives of their loved ones.
Read more  -   http://www.caredirections.co.uk/ 

People with learning disabilities have a reduced ability to understand new or complex information, and to be able to cope independently. Tunstall’s telecare solutions can be tailor-made to meet the needs of the individual, using a range of sensors as part of a supportive care service, helping people with learning disabilities, their families and carers to live full and independent lives as part of their communities.

Ubiquitous Pembrokeshire Carers (UPC) is a group for all unpaid carers, young or old, looking after friends or relatives with any sort of incapacity.
Young Carers

This is a website for parents, carers and people who work with and for disabled young people in transition to adulthood.
For Brain Injured Children and young people
Parents of disabled children can feel very alone and bewildered by all the services and information out there. Cerebra's Parent Support Department aim to help by offering information, support and various services that parents have told us would help them.
Examples of ways the charity helps are:

Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. We also enable parents to get in contact with other families, both on a local and national basis. Each year we reach at least 275,000 families.

representing the individual interests of people with learning disabilities living in Pembrokeshire
What is advocacy? - A free, confidential service for people with learning disabilities working to:

http://www.scovo.org.uklearning/ Disability Wales (formerly SCOVO) is the collective voice of the voluntary sector in Wales and promotes the right of children and adults with a learning disability to have valued lives.

The All Wales Forum of Parents and Carers.The All Wales Forum of Parents and Carers (A.W.F.P.C.) is an organization run by parents and Carers of people with a learning disability. The aim of the forum is to gather together the views of parents and Carer's across Wales in order to inform the decision makers and service providers both nationally and locally.
Contact Details:
All Wales Forum, 78a Oxford Street, Mountain Ash, RCT,CF45 3HB.
Tel: 01443 477795 

NCH helps children achieve their full potential.
Through our services we support some of the most
vulnerable and excluded children in the UK
NCH Children's Centre Pembrokeshire
(They produce a News Letter called Merlin's Messenger ask for a copy)
The centre offers advice, support and information to families who are caring for a child who is disabled or who has special needs. At the centre they can offer both an information service and a place to meet. There is also a pilot key worker system available for a limited number of families who care for a severely disabled child who receives more than one service. These workers can co-ordinate services, offer support to the whole family, provide information or act as an advocate when necessary.
Pembrokeshire Children's Centre
Unit 6 Merlin's Court
Winch Lane
SA 61 1SB.
Tel No. 01437 764569. Fax 01437 779155 or click to E-mail

The service aims to support disabled children and young people and their families, within their own communities by providing a range of short break services based on the assessed need of the individual child or young person. These services enable them to take advantage of the opportunities available to their non-disabled peers by being included in and using local community activities and venues.

Disabled people and carers

The government is making it easier for you to access information and services through a website called Directgov. It provides information for disabled people and information for carers. Directgov provides information about:
Directgov also explains how to claim Attendance Allowance, Disability Living Allowance and Carer's Allowance online. Follow the Directgov links above to the 'How to claim' sections.

Motability is a national charity, set up on the initiative of the Government in 1977, to assist disabled people with their mobility needs. We direct and oversee the Motability Scheme which enables disabled people to obtain a car, powered wheelchair or scooter simply by using their government-funded mobility allowances.

The Independent Living Funds provide a "direct payment" that enables people to purchase care from an agency or pay the wages of a privately employed Personal Assistant (PA).
The Funds are a Non Departmental Public Body.  For both Funds, awards are in the form of regular four-weekly payments to individuals, which are used to buy personal care in the community. Recipients may use care agencies or employ personal assistants, but may not employ relatives who live in the same house.

The Rowan Organisation is currently under contract to provide support and assistance to users of Direct Payments

About The Rowan Organisation

The Rowan Organisation is an organisation of disabled people which provides disabled people with access to information, services and resources in order to increase their opportunity for independence
and enable them to make informed choices about their future.
This site provides information about the services we provide together with links to other resources which people may find useful. Please take this opportunity to explore our site
Happy browsing.

Some local Providers who may be able to provide packages of care and respite
using I.L.F. and direct payments
Elliots Hill Care is also involved in providing a wide range of support services in the community to clients who are eligible for ILF funding and through Supported Housing and other initiatives. They are registered by CSSIW as a Large Domiciliary Care Agency for both adults and the under 18 age-group. They have been awarded contracts to provide full time care in community based domiciliary settings, providing specialist care for clients with learning disabilities, severe physical impairment and challenging behaviour. They are also contracted to provide support for community-based people with mental health problems, and this service has expanded to cover the whole county.

Some people we support require minimal input, perhaps getting help with household budgeting whilst others require help and support 24 hours a day with things such as making meals, washing and personal care, dressing, all household tasks, leisure pursuits, holidays and other day to day activities

Bramble Bay Ltd
Broadmoor, Kilgetty,
Pembrokeshire SA68 ORN    
  Tel No.01834 812702
Residential and Comunity Support for Adults wuth Learning Disabilities

ShangriLaCare Services will provide a comprehensive domiciliary and residential care service
to young adults aged between 18 and 65 years of age with a range of learning disabilities
including physical disabilities, in the Pembrokeshire/ Carmarthenshire border areas. The range of
services includes;
PERSONAL CARE direct care involving physical assistance to service users in order to
maintain (or improve) adequate bodily functions such as assistance (physical or
supervisory) with eating, bathing, toileting or assistance with mobility.
CARE such as ensuring the personal safety of the service user, general
counselling tasks, dealing with emotional problems and support of a psychological nature.
budgeting, shopping etc.
service user empowerment and meaningful community integration.
Contact details: Chapel Hill Farm House, Maidenwells, Pembrokeshire, SA71 5HY
01646 661284
Email shangrilacareservices@yahoo.co.uk
A Crossroads service is about giving time - improving the lives of carers by giving them time to be themselves and have a break from their caring responsibilities. Our aim is to provide a reliable service, tailored to meet the individual needs of each carer and the person they are caring for. We have schemes in most parts of England and Wales, which provide a range of services to meet local needs.

Every scheme provides practical support where and when it is most needed - usually in the home. A trained Carer Support Worker will take over from the carer to give them 'time to be themselves'. We talk to the carers about how often they would like us to visit, how long the visit should be and at what time they would like our support provided. They then have 'time' to use as they wish - to see friends, keep appointments, study, read or even just to sleep.

Mencap is the UK's leading learning disability charity working with people with
a learning disability and their families and carers.

  • We provide information and support for people with Down’s syndrome, their families and carers, as well as being a resource for interested professionals.
  • We strive to improve knowledge of the condition.
  • We champion the rights of people with Down’s syndrome.

We champion the rights and interests of all people with autism and aim to provide individuals with autism and their families with help, support and services that they can access, trust and rely upon and which can make a positive difference to their lives.
Our website includes information about autism and Asperger syndrome, the NAS and its services and activities.

Disability Alliance (DA), publishers of the Disability Rights Handbook, is regarded as the leading authority on social security benefits for disabled people. You can use this site to find regularly updated information about benefits, tax credits and community care as well as disability benefits related campaigns.

SNAP Cymru is a Charity that offers information and support to families of children and young people who have special educational needs. These may be additional learning needs or disability. SNAP Cymru is the leading provider of Parent Partnership Services in Wales, giving thousands of families information, advice and support every year. 

The Family Fund provides timely grants to families with severely disabled children,
based on families' views and needs.

Through facilitating the setting up of circles of support (find out more) we have provided support for many hundreds of disabled people in the UK. All of our work is based around the Values of Inclusion (find out more).  In all of our forms of support, we make use of person centred planning (click here to find out more), so ensuring that the focus person is in control of every aspect of the planning of their lives.

Department of Clinical and Experimental Epilepsy

information on radar keys and disability network

The Learning Disabilitiy Implementation Advisory group. (packed full of information)
Here you will find useful links to Websites in the learning disability field.

An amazing amount of informationon one webesite. A great self-help service. Citizens adcice bureau.

Directory of Services - Health and Wellbeing


'Frame promotes social inclusion, self worth and personal well being through supported, meaningful occupation and education, particularly for those with or recovering from mental ill health
and/or with a learning disability.'

ADHD A Path to Success. Aspergers Resources - Disabilities Resourses.

Welcome to PAVS online
Pembrokeshire Association of Voluntary Services  -  supporting voluntary action in Pembrokeshire.
Please browse our site - you will find a wealth of information for voluntary and community groups. Find out how you can get involved in and benefit from our

Pembrokeshire Local Health Board

The NHS Direct Wales website contains a wide range of health information including details of dentists, pharmacies, sexual health clinics and support groups in your area as well an A-Z encyclopaedia of health. You can also send a question about your health to our online enquiry service.


Pembrokeshire Housing - Womens Aid  -  Care and repair
We can visit you at home to help you arrange for repairs, improvements or solutions you may need to help you remain independent in your own home.
Through the Agency's Care & Repair Service we give practical support throughout the process and provide advice on possible funding sources and technical assistance. We are also able to review your welfare benefits entitlement and place you in touch with other organisations that may be able to help.

How can we help?
The Pembrokeshire Branch of the Alzheimer's Society was launched by carers
to support people with dementia and their carers.

Pembrokeshire Coalition aims to promote Equality, Inclusion and Awareness of disability issues amongst the population of Pembrokeshire

The Communities First programme is a Welsh Assembly Government long-term strategy for improving the living conditions and prospects for people in some communities in Wales.The Llanion ward of Pembroke Dock has been designated a Communities First area. People active in their communities, agencies and members of the voluntary, business and statutory sectors have formed a partnership to make things happen in Llanion.

For Information on
Benefits, Charities,
Mobility Equipment,
Vehicle Dealerships, 
Hearing Aid Dispensers, Hotels suitable for people
with disabilities,
plus much, much more.

‘Clynfyw is a special place. Well-equipped accommodation, relaxing, beautiful setting and a welcoming host.’
Based on a 200 acre family-run organic farm and woodland, a holiday at Clynfyw allows you to relax in a quiet, beautiful environment with stunning views of the Cych valley and north Pembrokeshire countryside.

Disability Now's Holiday accommodation section lists accessible hotels, cottages and B&Bs in the UK
and abroad. Each listing contains contact details and often website links.
The Trust provides four self-catering holiday houses in Pembrokeshire, UK for families with disabled children.
Three houses are in the Tenby area and are fully adapted and equipped for physically disabled children and the fourth, in Narberth, has been adapted for children with autism and other learning difficulties. All the houses have convenient parking and are available all year.

A large welcoming house in west London in which full time carers at home can come for a holiday / supportive break.

Welcome to the Carers Information web site.
Here you will find articles, documents, links and other resources to support informal carers.

The Welsh Assembly Government

The Welsh Assembly Government is the devolved government for Wales. Led by the First Minister, it is responsible for many issues, including health, education, economic development, culture, the environment and transport.

The National Assembly for Wales

The National Assembly for Wales is the representative body with legislative powers in devolved areas. It has sixty elected members and meets in the Senedd.

If you or someone you know has a sight problem we can help. Contact our Helpline on 0845 766 9999.